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Registry of Sarcoidosis Associated Pulmonary Hypertension (RESAPH)

Information source: University of Cincinnati
ClinicalTrials.gov processed this data on August 23, 2015
Link to the current ClinicalTrials.gov record.

Condition(s) targeted: Sarcoidosis; Pulmonary Hypertension

Intervention: Observation (Other)

Phase: N/A

Status: Recruiting

Sponsored by: University of Cincinnati

Official(s) and/or principal investigator(s):
Robert P Baughman, MD, Study Chair, Affiliation: University of Cincinnati

Overall contact:
Robert P Baughman, MD, Phone: 513-584-5225, Email: bob.baughman@uc.edu

Summary

Registry to follow patients with sarcoidosis associated pulmonary hypertension

Clinical Details

Official title: Registry of Sarcoidosis Associated Pulmonary Hypertension (RESAPH)

Study design: Observational Model: Case-Only, Time Perspective: Prospective

Primary outcome: Survival

Secondary outcome: Disease management

Detailed description: This is a multi center registry of sarcoidosis associated pulmonary hypertension (SAPH). With this registry, the investigators will characterize the demographics, clinical course, hemodynamics, pulmonary physiology, and disease management of sarcoidosis associated pulmonary hypertension on the United States. The investigators will also compare these features to non-US sites.

Eligibility

Minimum age: 18 Years. Maximum age: N/A. Gender(s): Both.

Criteria:

Inclusion Criteria:

- Patients with sarcoidosis as defined by the ATS/WASOG statement

- Patients with pulmonary hypertension as confirmed by right heart catheterization

- Patients willing to provide written informed consent

Exclusion Criteria:

- Unwillingness to provide assurance that they will complete the follow up visits for

the study

Locations and Contacts

Robert P Baughman, MD, Phone: 513-584-5225, Email: bob.baughman@uc.edu

University of Cincinnati, Cincinnati, Ohio 45267, United States; Recruiting
Rebecca Ingledue, Phone: 513-584-6252, Email: ingledra@ucmail.uc.edu
Robert P Baughman, MD, Principal Investigator
Peter Engel, MD, Sub-Investigator
Additional Information

Starting date: November 2011
Last updated: January 26, 2015

Page last updated: August 23, 2015

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